Getting Help to Live with FND
Living with FND can impact many parts of daily life—from your physical health and mental wellbeing to your social relationships and family routines. FNDLincs is committed not only to providing reliable information about the condition, but also to helping you access and make the most of local community services. Our aim is to connect you with the practical support, resources, and networks that can make everyday life easier and help you feel more supported in your community.
It is important that people (and their families) can access all of the services that are available to the citizens of Lincolnshire. Having a diagnosis of FND should not be used as an exclusion criteria.
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Our community meetings offer a welcoming space to meet others living with FND, share experiences, and learn from one another. Many people find that simply talking to someone who truly “gets it” can bring enormous relief. We foster a friendly, inclusive atmosphere—whether you’re newly diagnosed or have been managing FND for years, you and your family are always welcome to join us.
We also welcome professionals and care workers who want to find out more about living with FND.
Find out about our next meeting here
We work closely with Lincolnshire Partnership Foundation NHS Trust (LPFT) to help improve understanding of the mental health needs of people with FND.
If you feel you or someone with you needs help or support with your mental health please visit the LPFT website for latest guidance
If in doubt dial 999
The Lincolnshire Wellbeing and Recovery College provides free educational courses focused on mental health and wellbeing. Anyone living in Lincolnshire and aged 16 or over can sign up. The College provides a safe space for those wanting to learn about improving wellbeing and living well with mental health.
Click here to see what other support is available
Chronic pain and fatigue are common companions to FND. In Lincolnshire, there are resources to help. For example, Pain Café meet-ups allow those with chronic pain to share management tips (often run by pain clinics or charities). There are also pain management programmes such as Live Well with Pain – a course that teaches skills for living better despite pain. For fatigue (including conditions like ME/CFS which overlap with FND for some), local support groups and experts can advise on pacing techniques and energy management. Engaging with these groups so you can learn strategies to cope with fatigue and “brain fog” can have very positive outcomes for people living with FND.
Gentle exercise and activity, tailored to your abilities, can be very helpful in FND recovery. We encourage trying things like yoga, swimming, or even short walks – whatever feels achievable. Initiatives like Let’s Move Lincolnshire promote accessible physical activities in the community. Additionally, services like One You Lincolnshire provide free healthy lifestyle support (e.g. exercise classes, stop smoking help, weight management) which can indirectly benefit your overall health and FND symptoms.
FND doesn’t just affect those diagnosed with the disorder – families and carers also need support and advice. In Lincolnshire, Carers First and Carers UK are excellent resources for anyone caring for someone with a long-term condition. They offer information on benefits, respite, and local carers’ support groups.
Lincolnshire Young Carers focuses on young people who are caring for a parent or sibling – ensuring they don’t feel alone and can balance caring with education and their own needs. FNDLincs welcomes carers to join us at our events and to get in touch if we can help.
Click here to see what other support is available
There are many services around Lincolnshire that can assist people with FND and their families to stay well and remain connected with their local community and continue to do the things they like to do such as hobbies and interests.
A good example of this, H.A.Y. Lincolnshire (“How Are You?”) is an online directory of local mental health and wellbeing services – it’s a great way to discover activities or groups in your area that might help with isolation or mental wellness.
Your local Community Connectors can link you to community support if you’re feeling isolated or need practical help.
Click here to see what other support is available
You may want to contact Citizens Advice for issues about finances, employment rights, or disability benefits – important aspects when managing a health condition.